The government’s focus on dementia is a positive step forward; but more needs to be done to improve the quality of post diagnostic care for families living with dementia.

 


A recent report of our Admiral Nursing Direct helpline found that 80 per cent of calls included discussions about the difficulties the family carer was experiencing on a daily basis with the person with dementia; and nearly a third of calls on the negative impact caring was having on their personal well-being, including frustration, distress and exhaustion.

In more than three-quarters of the calls, our Admiral Nurses – expert dementia nurses – gave advice where a carer wasn’t getting adequate support locally. These family carers were informed how to: navigate the health and social care systems, adapt their living arrangements, deliver personal care, get a diagnosis of dementia, ensure the safety of themselves and their family member, address problems with eating and drinking, and improve communication and relationships.


 

Family carers who need support, and professionals who are seeking dementia advice can contact the Admiral Nursing Direct Helpline on 0800 888 6678 or direct@dementiauk.org.