What is the right level of support following dementia diagnosis?
Dementia With growing numbers being diagnosed with dementia, it's more important than ever to ensure people can easily access support which will help them to live their life with dignity and to the fullest.
While there is no cure for dementia yet, there's a lot more we can do to make life better both for those living with the disease and for those caring for them. We regularly hear from people who have been told they have dementia and then find they have nowhere to turn to for support or help in understanding how it will affect their lives day to day. As a result Age UK ran a number of pilot schemes throughout England in 2015-16 to find out what the best model of support would look like for someone living with the condition and their carers.
One of the recurring themes from the pilots was how overwhelmed people felt with all the information they received directly following their diagnosis versus having little or no support at all further down the line when they so desperately need it.
People with dementia often feel overwhelmed with information. Alternatively, some feel that they have nowhere to turn.
As such, it is important that every person living with dementia and their carers can access regular and personalised advice and support from diagnosis to the end of life, regardless of where they live; for example, to help them navigate the local health and social care system and direct them to other services or peer support groups.
As well as funding and research for future generations, we also urgently need to invest in better social care to ensure that older people currently living with dementia can continue to live well.