Photosensitive epilepsy patient story
Epilepsy Megan from Darwin, Lancashire was diagnosed with photosensitive epilepsy at the age of 10, in 2007.
“I have experienced Tonic-Clonic seizures since I was diagnosed with epilepsy. However I have also had experience of having absence seizures. I have been fortunate enough now to have not had any seizure for 11 months, which is a huge achievement for me.
“I have noticed recently that people can sometimes avoid employing you for the simple fact of what happens if you have a seizure in their workplace. However, in some ways it has helped me with my job. I’m a lifeguard and I feel more comfortable dealing with a seizure than any other incident as I know how that person is feeling, and my job has also helped me become more confident when explaining what epilepsy is and the correct first aid treatment for a seizure. I have also found applying for driving licenses hard and stressful due to all the paperwork, but that is understandable.
Having epilepsy has never had an effected on my relationships/friendships as I have always made the people I am with aware of what could happen and what they should do. But it has had more of an effect on my family, as I have recently moved out of home and into University accommodation. My parents’ main priority was to make sure that the people I am living with knew about epilepsy and how to deal with it. But they did leave it up to me to tell them, as I can be uncomfortable telling people straight away that I have epilepsy, as you never know how people will react.
I feel that epilepsy is a condition that many people don't really know about or know what it is like to live with. I want to show people how I have coped with having epilepsy and the shocking reality that comes with it.
Putting all the pictures together changed how I view having epilepsy. It showed me all the incredible journeys I have been through in the space of a year, some of which I never thought I'd be able to do because of epilepsy. I used to think that having epilepsy stopped me having much freedom and that people (mainly family) were always very protective and limited me to what I could do. But now when I look back at the pictures, I realize that they were supportive in everything I did and never took my freedom away from me or stopped me.
If I could sum up living with epilepsy in a few words, I would say it is definitely hard and life-changing, but it makes you a stronger person as you realize the barriers you can overcome in any situation.