Aiding people with Spinal Muscular Atrophy
Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA) is a rare, genetically inherited neuromuscular condition. It may affect crawling and walking ability, arm, hand, head and neck movement, breathing and swallowing.
SMA is often grouped into types which vary in severity. There are four main types and other rarer forms.
Babies with SMA Type 1, the most severe form, are unable to sit without support. Sadly, usually due to breathing difficulties, very few survive beyond two years of age.
Children with SMA Type 2 are unable to stand without support. Although it is a serious condition that may shorten life expectancy, improvements in care standards mean that most live long, fulfilling and productive lives.
Spinal Muscular Atrophy Support UK is a UK-wide charity for anyone affected by any form of SMA.
Our experienced support services team offers free confidential information, emotional support, practical advice and guidance by phone, email and home visits.
SMA Support UK also:
- provides multi-sensory toy packs for babies with SMA Type 1
- provides small grants to help fund equipment that cannot be provided by health or social services
- puts adults and families in touch with our Peer Support Volunteers who all have personal experience of SMA
- organises social activities for families
- keeps families informed about SMA related research
- helps fund research projects and links with national and international groups
- advocates for better services and raises public awareness of SMA in partnership with the health, social care and research communities