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  Redefining the rare disease launch to reach every patient

  Dr Saiqa Khan, Head of Growth, Global Marketing, at Avalere Health, explains why success in rare disease can no longer be measured by strength of data or time to diagnosis. It must be measured in the number of lives transformed. Rare diseases represent one of healthcare’s most complex frontiers. The umbrella term rare disease covers...

  3 min read
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  Truth and trust go hand in hand in rare disease information

  Pharma companies must deliver rare disease education and awareness information accurately and authentically. Otherwise, it risks being more harmful, rather than helpful. Alchemist Consulting helps pharmaceutical companies deliver compliant disease education, support and awareness information to rare disease patients, carers and the public. Authentic portrayal of rare disease “Pharma companies often produce information about a disease...

  2 min read
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  The role of rare disease education in the diagnostic odyssey

  For a child with a rare disease, a doctor’s continuing education can end a years-long diagnostic odyssey and unlock access to vital care. A harmful adage in diagnosis In medical school, doctors are taught, ‘When you hear hoofbeats, think horses, not zebras,’ guiding them to focus on diagnosing common conditions and to discard the possibility...

  3 min read