Shining a light on those living with sickle cell disease
Charity groups and campaigners are raising awareness of sickle cell disease as those living with the most common genetic condition in the UK continue to face barriers to healthcare access. Sickle cell disease (SCD) is the most common genetic condition in the UK but people living with SCD still face barriers accessing care and treatment. … Continued
Rare Diseases Q1 2022
The power of rare: share your colours on Rare Disease Day
On 28 February, over 100 countries and regions around the world join their voices to raise awareness and generate change for the 300 million people with rare diseases, their families and carers. The rare disease patient community remains a marginalised and largely invisible population, with little information about their diseases and rights, few treatments available … Continued
Offering turnkey solutions for rare disease patients
Gareth Williams, President of Sciensus Rare, discusses his organisation’s role in providing turnkey solutions for rare disease pharma and biotech companies. What can Sciensus Rare help a pharma/biotech company within rare disease with? We have been supporting rare disease patients since 1992, treating on average over 200,000 patients a year – we understand the challenges … Continued