Ensuring children with a rare disease are no longer left behind

Improving and expanding childhood vaccination against routine and new diseases is vital for our children’s health and global public health.  Ever since the smallpox vaccine discovery over two centuries ago, vaccines have successfully worked to eradicate, eliminate or control many infectious diseases.   Red alert for child health  However, in the wake of the Covid-19 pandemic, … Continued

A new parent-focused portal is launched to increase awareness of childhood myopia, what it really is and what you should be doing about it. Myopia (short-sightedness) affects one in three people in the UK; however, it is now twice as common as in the 1960s. Of the 5 billion people globally predicted to be myopic … Continued

FOP turns patients’ muscles and tendons into bone and is often misdiagnosed. Know the signs and how to get more information on this rare, disabling condition. Fibrodysplasia ossificans progressiva (FOP) is one of the rarest, most disabling conditions known to medicine. With only 1,000 confirmed cases worldwide, the disease exhibits no ethnic, racial or gender … Continued