Putting patients at the centre of advances in prostate cancer treatment

Dystonia is a neurological movement disorder affecting over 100,000 people in the UK, yet so few have heard of it. We aim to change that. What is dystonia? Dystonia is a neurological movement disorder. However, there is so much more to this often misunderstood condition. Dystonia causes uncontrollable muscle spasms, triggered by incorrect signals from … Continued

Endometriosis care has been neglected, harming patients and the economy. This Endometriosis Action Month, governments must take bold action to improve care for the 1 in 10 affected in the UK. If we are to debunk the myths that are riddled within our society about endometriosis, such as ‘It’s just a bad period’ or ‘It’s … Continued

No country can tackle rare diseases alone, but cross-border networks can connect expertise to improve specialised care access. Rare diseases affect around 30 million people across the European Union.1 While each condition is rare, the collective impact is substantial. Challenge of diagnosis For many, the path to diagnosis is long and uncertain: 50% of patients … Continued