(Aged 7) photo credit: Ceridwen Hughes/Same but Different
Iggy has a condition called Trip 12, which can lead to intellectual disability, language and autism.
‘I have days that are about accepting and being really grateful that he is exactly who he is. I think he’s just incredible, and that’s definitely a part of the genetic condition so in a weird way I’m also grateful for it.’
The National Organization for Rare Disorders (NORD®) is the leading advocacy organization representing people affected by rare diseases in the United States, voicing the needs of the community, driving policies, advancing medical research and providing patient services. Visit rarediseases.org. and join us at the 2020 Rare Diseases & Orphan Products Breakthrough Summit, a virtual event.