Opportunities to improve the lives of those with rare conditions

Dystonia is a neurological movement disorder affecting over 100,000 people in the UK, yet so few have heard of it. We aim to change that. What is dystonia? Dystonia is a neurological movement disorder. However, there is so much more to this often misunderstood condition. Dystonia causes uncontrollable muscle spasms, triggered by incorrect signals from … Continued

Endometriosis care has been neglected, harming patients and the economy. This Endometriosis Action Month, governments must take bold action to improve care for the 1 in 10 affected in the UK. If we are to debunk the myths that are riddled within our society about endometriosis, such as ‘It’s just a bad period’ or ‘It’s … Continued

Chronic musculoskeletal conditions, such as osteoarthritis and persistent, undiagnosed joint pain, are a leading cause of disability and healthcare utilisation in the UK.1 Delays in diagnosis, particularly for infectious arthritis, can result in prolonged pain, missed windows for early treatment and an overburdened secondary care system. Faster arthritis diagnosis breakthrough OrthoDx are seeking to address … Continued